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Category Archive for 'pepfar'

On May 10th, The New York Times published a heartrending story on the faltering fight against AIDS in Uganda — a story that has sparked a firestorm of controversy and criticism of the Obama Administration’s global AIDS strategy.

The Times identified a deep funding gap for combating AIDS in Uganda, including a freeze on new funds from the United States and a lack of commitment to AIDS spending by the Ugandan government (which evidently has no problem finding $300 million to spend on Russian fighter jets). The Times also outlined the devastating human toll this funding gap is taking on people living with — and dying of — AIDS.

Sadly, this news is not new. In March 2009, PHR invited Dr. Peter Myugenyi, Founder and Director of the PEPFAR-supported Joint Clinical Research Centre in Uganda, to Washington, DC to talk about the emerging funding gap for AIDS in Uganda. Said Dr. Mugyenyi:

After urging people to get tested and enter care, we now have to tell them there is no treatment available when they need it. We created hope and now we are returning to the days when one member of a family can get treatment and the others cannot.

It is a recipe for chaos as patients start to share doses or skip treatment altogether. I fear that we will soon start to see more drug-resistant strains of HIV and rising death rates.

As The Times notes, one year later, Dr. Myugenyi remains fearful:

Dr. Peter Mugyenyi, the hospital’s founder, helped the Bush administration form its AIDS plan and sat beside Laura Bush during the State of the Union address as it was announced.

The loss of donor interest “makes me frantic with worry,” Dr. Mugyenyi said.

He offers copies of e-mail messages he exchanged with American aid officials. One reminds him that he has been instructed to stop enrolling new patients and asks for an explanation of reports that he is treating 37,000 when only 32,000 are authorized. Another asks him not to announce publicly that his funds have been frozen.

He admits slipping pregnant women and young mothers like Ms. Kamukama into treatment slots “contrary to instructions.”

“Morally, I can’t turn them away,” he said.

This story gained traction worldwide, and was followed by a New York Times editorial, The Wavering War on AIDS, which outlined a $13 billion deficit in AIDS spending, and a series of letters to the editor, including one by PHR Global Health Action Campaign advisor Pat Daoust.

Dr. Mugyenyi won’t turn away patients. And we won’t turn away from this issue.

PHR, in conjuction with other global health groups, sent a letter to Secretary of State Clinton last week, urging her to end the AIDS funding freeze and ensure Ugandans have access to life-saving AIDS treatment.

PHR members have spent years advocating for more global AIDS funding and health programming based on science and human rights. We will continue to fight for greater global health funding, a strong US global health strategy, and to ensure people living with AIDS worldwide have access to drugs and quality care.

Want to help? Encourage your Representative to co-sponsor the Global HEALTH Act, which will provide $2 billion for health system strengthening and support a comprehensive US global health strategy, both of which will help in the fight against AIDS.

You are not the only one encouraging your Congressperson to co-sponsor the Global HEALTH Act. Representative Barbara Lee sent a letter to all her Congressional colleagues last week, urging them to support the bill. Check out her letter below. It outlines the four ways that the Global HEALTH Act will assist with the development and implementation of Obama’s landmark Global Health Initiative. The Act will provide strategy, consistency and a greater emphasis on health workforce and health systems — all key to making foreign health policy that supports the right to health.

Her letter includes a list of organizations from across the globe that support the Global HEALTH Act — including PHR. Organizations are continually being added to this list, and we encourage you all to contact your Congressperson and urge them to co-sponsor this bill, which will revolutionize foreign health aid and save lives.

I just returned from an inspiring ANAC conference (Association of Nurses in AIDS Care). It is always fun, fabulous and totally energizing to be around ANAC members, who are deeply committed to stopping AIDS, supporting people living with AIDS and building an amazing community of caregivers, educators and advocates.

Former PHR Health Action AIDS Campaign Director Pat Daoust was honored with one of ANAC’s most prestigious awards, the Public Serive Award, for her three decades in AIDS care and her amazing advocacy work through Health Action AIDS. Her acceptance speech is below. In it she thanks all of you, the campaign’s supporters, for your deep commitme

nt to stopping AIDS. Read and be inspired!

First of all, thank you very much. I am extremely humbled and honored by this recognition, especially because it comes from this organization — ANAC — my fellow nurses.

When I received word that I would be the recipient of the Public Service Award, the letter noted that this is in large part an acknowledgment of the work accomplished as Director of the Health Action AIDS Campaign while at PHR. While I am extremely proud of the campaigns’ successes, I am the first to emphasize that without our coalition partners and the commitment of our members — particularly the thousands of nurses both here in the US and abroad — we would never been able to reach our goals!

  • Wen we called upon you to write or sign on to letters to members of congress calling for the repeal of the HIV travel ban.
  • When we asked you to set up in-district meeting with your representatives to help educate them on the importance of women’s rights and the need to integrate FP and reproductive health care with HIV service.
  • Whenever we held summits or organized hill meetings to advocate for US investment in health systems and health workers in the developing world.
  • Whenever we urged op-eds or LTEs that addressed human rights or the right to health for the most vulnerable including IDUs , MSN or women and children at risk for HIV.

You never let us down. You always rallied above and beyond.

The powerful voice of the nurse truly made a significant impact. The wins for AIDS, human rights and global health could never have happened with out the expertise, the dedication, the passion and the commitment of the largest group of health professional in the world. NURSES!!!

Our size as a profession — comprising close to 80% of all health professionals in the world — gives us power but also holds us responsible, obligates us to be advocates for those who voices are not hear. Our work is not done: appropriations for PEFAR and global health is still an unknown and with 70% of those in need of treatment lacking access and infection rates continuing to grown we have to keep our mission on the front pages and at the top of the USG agenda.

In closing I want to acknowledge and thank Deb von Z for nominating me for this award, the ANAC board for approving the nomination, my mentor Larry Kessler, the founder of the AIDS Action Committee in Mass, who first taught me about advocacy and  the entire HAA team at  PHR  and, last, my biggest supporter,  my husband Paul, who for years has put up with my international travel, my long absences and my obsessive behavior. He has never once complained.

Thank you all once again.

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